taking our mind of things

taking our mind of things

Wednesday, February 4, 2015

uneventful update

School seems to be going really well. JD is excited every morning to get going!

After having to miss last Wednesday and Thursday due to his rash, and then Monday this week due to the weather; JD was jumping all in to get back to school for Tuesday and this morning!

The rash battled it's way through, and by the end of the weekend he was back to good. Don't get me wrong, I was scoured his little body when he came home Tuesday night to see if he had shown any signs of a reaction. Since we don't know what caused it to begin with. It's so frustrating to say that.

But back to school So he's had a total of 4 days at school since returning. He's loving being with his friends. He tells me what he's covered when he's been in class. Yesterday was ground hog and Ground Hog Day information. Today was about healthy living. Now he's going around the house telling me what I should and shouldn't do to stay healthy. I just hope he didn't take anything specific and form his own hypothesis for why he got sick. Such as he told me today that we should get rid of the tv as watching it can make you sick. I told him he was right it was wrong to watch too much, but that didn't make him sick! That we have always been a very active family. Before getting sick, we would spend every weekend, regardless of season, hiking up in the mountains. A month before onset, we actually completed a 6 mile 3744ft submit of one of the mountains. The kids enjoy LOVE it! We get to see so many animals and spend so much time in nature. So for JD to concern himself with this, I don't want it to become his new focus. He doesn't need to struggle and wonder why he got sick. No one knows. Not even the specialists. So let's not make him deal with it.

His aide tells me that he is doing really well, and she can see him stretching out and trying to do more for himself. They are not seeing many of the behaviors at school, so that is a positive for this mommy. He hasn't had any OT, however. I'm hoping that gets started soon. I'll know more about all of that at our next meeting on Monday.

However, when we get home he is so exhausted that he breaks down. At the store tonight, I mentioned I wasn't going to look at one thing and he just had a melt down. The problem is that when he does that, he stops focusing on his support and collapses. I'm thinking that he is just getting overwhelmed. But he loves it, and I won't be stopping the supporting push from behind.

Not the most eventful update, but that's what is going on in our little world! Better than the steps backward we've been seeing as of late!

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