taking our mind of things

taking our mind of things

Wednesday, January 28, 2015

Another hurdle

It seems we get so far ahead, and something else gets thrown at us!!

John-Douglas woke up with a severe rash. A head to toe spotted annoyance.



So of course he had to miss school. Only been going for 2 days, and already a sick day. I'm of course having every thought possible. He hasn't been out in school, so who knows what he could have contacted. I don't know if this causes him to be immunosuppressed. I hate the not knowing.

Last night while we were sitting at the table doing some of his school work, he complained his elbows were itchy. I looked and noticed they were red, and thought maybe it's from sitting at school and doing desk work. He hasn't had to spend that amount of time before. After dinner and work done, we went up to take a bath. Which once he finished that, I noticed there was some rashes forming on his knees. Put some anti-itch cream on it and tucked him in. He woke me up in the middle of the night that his back was itchy. Again, put cream and got him a bit settled.

But that is how we woke up! It seems to be worse on points where the bones are closer to the surface, and pressure zones. They are on his elbows, knees, hips, and follow his spine vertebrae for vertebrae! And of course his face!!

 I called his pediatrician as soon as I knew someone was in the office. The nurse said I could bring him in at 9:30. Started getting everyone ready. The moment JD put socks on, he screamed a blood curdling scream. "Mommy, it burns! The socks are burning me!!" He tried to stand up, and he collapsed to the floor. A heart breaking and heart stopping moment! Once we got him on the couch, I told him he only had to deal with it until we got home. He complained that his joints hurt and popped.

 So once it was time to go, I picked him up and very gently carried my big man to the car. I wasn't going to make him deal with the pain of putting weight on his feet. He hasn't complained or had pain of this magnitude since the hospital. Images of my baby back in a hospital bed flooded through my mind. Once we dropped Ptolemy off, we headed over.

The one good thing about a small office is you can get in pretty quick!

After a quick exam, it was determined he's having an allergic reaction. He said possibly to the Augmenton he had been on for the pneumonia. My question in regards to that is that shouldn't it have happened sooner. And he agreed, it should have happened the first couple days. Not after he had already finished a week of it. He also said it doesn't look like a typical reaction to medicine. He assumes it's environmental, and just recommended Benadryl

So that's it. That's what we're going with. I'm very hesitant to agree with that. Why? Because there has really been no new environmental changes. No new detergents. No new foods. Nothing. Except school? and well, he's home now and it's still going on! Also, WHY would this reaction cause such violent pain!?!

We stopped to get his meds on the way home, and I gave him a few doses of the Benadryl and it helped the annoying itchy feeling. It helped him rest a bit. The reddest aspects left, but he still had lighter red spots. But he has some blisters forming on his lips.




However, once the Benadryl started to wear off, the larger red dots returned. Called the primary again, and we have Prednisone to give him with the Benadryl. So we'll see how this goes!

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